President Bush Is Wrong For Denying Children Healthcare

Presently I have good health coverage, but each enrollment period I brace myself to see what changes my insurance carriers will make. I just found out this year, my insurance no longer pay for routine eye exams. What pisses me off more is how private insurance companies are slowing hacking away at the medical coverage Americans get.

It also angers me that President Bush thinks so little of American children when it comes to healthcare.

UPDATE

Three generations of activists tried to teach President George W. Bush a new song about health care today. Flanked by congressional leaders, AFL-CIO President John Sweeney and members of the Alliance for Retired Americans,

A group of children kicked off a Capitol Hill press conference today singing:




I don’t want your millions mister.

I don’t want your car and wealth.

All I want is SCHIP, mister,
So kids like me can have good health.

I Am Saying No To Tysabri

I have been contemplated on trying the multiple sclerosis therapy Tysabri. I actually convinced myself I was going to have my first Tysabri infusion in September. While I was in the MRI machine August 22, I thought about how miserable I felt with the severe nausea and vomiting I've been experiencing from trying a new drug. I was also frustrated when the MRI technicians couldn’t get the IV in my veins to shoot the dye in my system for the second part of my MRI test. That was a first, they had to call a phlebotomist to insert the IV and she had trouble. My motto is if you do not get it on the second try leave me the hell alone.

My veins are gone in my arms, the surviving very small vein in my right arm is hiding and running when a needle approaches it now. The veins in my hands had start running and the ones that didn’t run when I had to have an IV inserted became inflamed to the point were I can not be stuck there again. Call me a coward, but I am not ready to have an IV needle inserted in my chest wall to receive a Tysabri infusion on a monthly basis. I am also not ready to risk possibly contracting PML and suffer the side effects that come with taking Tysabri.



Today I am saying hello to Copaxone again. My MRI’s shows stability in the scarring of my T1 and T2 area. That tells me Copaxone has been slowing the progressing of brain lesions for me. I have been taking daily shots of Copaxone for years and had become accustom to the pain and the sometime injection site reaction after taking a shot. Although some days are worse than others I prefer to stick to a MS therapy treatment that I know is working for me. My stomach, arms, thighs, and hips have enjoyed not being stuck everyday for the last thirty days, but a girl has to do what girl has to do.

I Could Be Wrong

I appreciate and I am thankful for the family and friends support I have when it comes to my health. I understand that they are scared and worried for me because of how my health changed this year, I am too. I have to and I am making my own decisions on how I battle multiple sclerosis, my doctors support the approach I choose to take, but in the end it is my decision. I know in my heart the day I die it will be from a drug I take to control the symptoms of my multiple sclerosis not the disease itself, but you know they will say death by complications of multiple sclerosis. I have a right to be wrong...
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Here I Go Again...

Until Montel Williams,advocate organizations and average citizens continue to help support the passage of bill H.R 1717 (Truth and Trials Act) passed and help get Tennessee twin medicinal marijuana bills H.B.0486and S.B. 0641 passed. I and many others have no choice but to continue to take man made prescription pain medication with unbearable side effects that can be potentially deadly to get relief from the severe pain while living with a chronic illness with no cure.

I thought the Duragesic morphine patch was my answer to be rid of the pain and nerve tingles. I told you what happened while wearing the patch. Today I am to start taking Kadian 20mg which is a morphine capsule. My doctor logic is the patch was dispensing morphine in my body 24/7 and it became too much for my body to handle. By taking the morphine capsule I can skip a day or two between dosages to keep the severe pain away.

I am not looking forward to ingesting morphine again, but I will if my pain return to this point in my life again. For the moment I believe I still have enough morphine in my system where I can control the intensity of the pain with Lortab. I am hoping once I start the Tsyabri infusion in September, there would be no need for me to take morphine. I am hearing good things about Tsyabri; I hope it works for me. If it don’t I guess I will be back to injecting myself with Copaxoneeveryday to slow the progression of lesions in my brain that is slowing destroying my central nervous system.

How Much Has Changed

I am average citizen who is sick and tired of the bull**** in our country. I blog about living with multiple sclerosis, but I have always had a lot on my mind and had nowhere to vent. When I first start blogging, I was pissed at the Democrat Party and the good old boy leadership on all government levels. I worked my ass off during the elections in 2004, just to continue to be disappointed on the local, state, and federal level. I will continue to fight and be a voice in my community for progress, but I am elated to witness the battle being fought through the blogs on a national level.

When I began blog jumping I was questioning why in the hell should I continue to be loyal to the Democrat party as a black person? I came across some fantastic white liberal blogs and black independent blogs whose main focus is politic, politicians, and social ills in our country. I’ve learned a lot from reading the blogs and enjoy knowing there are other people who are like minded on politics and social ills. I don’t feel as if I am alone anymore on how I feel about issues and politics. Blogs just might be the grassroots effort to conquer some of the social ills and problems that are still plaguing blacks in our country. Blogs are also a means for average Americans to get the truth out about certain political figures and help kick them out of office.

It’s getting harder to tell the difference of a Democrat from a Republican when it comes to being black and social issues in America. I definitely now consider myself an independent that leans liberal. The Democrats are no longer guaranteed my vote, a Republican (which I do not see one anytime soon) just might get my vote one day. The Green Party is looking pretty good...maybe that is what is needed in this country a third party.

How much has changed? (IMO) NOT ENOUGH

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Our Government Need To Do Right When It Comes To Legalizing Marijuana

It is proven fact marijuana for medicinal purposes works when it comes to pain, nausea, and spasticity oh I forgot and vision problems. The real reason why our legislatures will not legalize marijuana for medicinal purpose is because of the effing big drug companies. They rather keep prescribing medications that is harmful to a person than to legalize marijuana for medicinal purposes.

I Had To Tell

My nausea and vomiting became so severe; I had to tell before my next doctor's appointment. Puking out of my nose and mouth at the same time with my ear drums feeling as if they were going to burst is reason enough to tell. I was told to immediately take off the patch. The patch took my pain and tingles away, but the side effects were not going to get any better because they became severe in my third week. Now I have to wait and find out what medication my doctor can give me for my ms pain. I hope I have enough morphine in my system before the severe pain return.