Tampilkan postingan dengan label exacerbations. Tampilkan semua postingan
Tampilkan postingan dengan label exacerbations. Tampilkan semua postingan

Kamis, 04 September 2008

Solu-Medrol to the Rescue


I believe MS is a jealous disease. Remember when my body felt split in half, eventually my right side was slowing mending back to my left, but it still feel different from my left side, just not as intense from when I first talked about it. Two weeks ago, the right side of my head down through my neck and slightly below my right shoulder was becoming more painful than the other part of my right side. In the beginning I brushed it off thinking maybe I slept wrong, but as the days went by the pain intensified to the point, I could not move my head.

Still not wanting to believe it was an exacerbation creeping up on me. I start taking my Lortab for the pain and Zanaflex for the spasticity. I thought I had it under control because the drugs were working. I continued with my life attending the candidate I support for Mayor meetings and rallies. With the holiday, approaching I was ecstatic that my youngest daughter was coming home and I would have all my girls home for the holiday. I start preparing all of their favorite foods and while I was at it, I cooked collard greens and pinto beans to freeze for later use.

Nothing was going to stop me from enjoying my girls and grandson Labor Day weekend; it has been since July, that all of my girls were in one room. I was overjoyed of having my family together, that is when I realized MS is a jealous disease, my pain and spasticity that Lortab and Zanaflex had in control was being overpowered. I was no longer getting relief from the drugs. I put on a brave face and enjoyed my family; I REFUSED to lie in bed during their visit because of how I was feeling. I am paying the price now for not giving in to symptoms of MS that tried to take my joy away. Had I given in to MS I know I would have become depressed. Exacerbations had robbed me of many fun times with my family that put me in a depress state of mind. After my last bout of depression, I developed an attitude of fight or die and I am not dying anytime soon.

When I woke up Sunday morning, I could not walk; the pain and spasticity in my head went into my upper right hip. MS was showing me it could take me down no matter how hard I was fighting. The drugs were no longer helping the pain; I was wishing I never stopped taking morphine. I finally waved the white flag and called my neurologist, I need reinforcement. This MS exacerbation was not going anywhere soon. I no longer could move my head, or walk without the use of my cane, and the pain was too intense.

Solu-Medrol to the rescue, today is the first day of three 1000mg of steroids. (I am hoping for that high energy euphoria feeling this time around. The last time I had steroids I was one angry agitated witch.) Symptoms of MS did not win this go round...

I WON this battle because I enjoyed my family the holiday weekend.



Jumat, 11 April 2008

He Is One Reason Why I Fight MS



The other day is not the first time I had a horrific experience with medication I have taken to slow the progression of multiple sclerosis and I am sure it will not be the last. To see my grandson smile make me want to fight to be around as long as I can for him and my family.

There comes a time when I and I alone must make difficult decisions about my healthcare. Only people who live with this unpredictable illness can no what I am going through. Living with multiple sclerosis is not a cakewalk and it is a daily struggle to stay positive and navigate your life living with MS. I am not going to lie, it is a daily fight for me, but I am thankful that I have an inner strength that picks me back up to fight and not give in to MS.


My neurologist decided I should start Betaseron as soon as possible to slow the progression of MS. I understand as a doctor why she wants me to immediately continue a treatment. At the end of the day the decision has to be mine, therefore, I told my doctor, “After my terrifying experience the other day, I do not want to take anything right now. Yes, I know MS can cause serious problems if left untreated, but I have had serious problems treating it, so what is the difference".

I have decided to go without treatment to slow the progression of multiple sclerosis for now. I AM NOT QUITTING MY FIGHT WITH MS; I need to do this for me right now. In my heart, I know that my body cannot take another terrifying episode while on treatment.

There are risks in all of the DMD's available to slow the progression of MS. I plan to go without treatment until my MRI starts showing new activity of brain lesions or if I start having too many exacerbations. I hope that I can go a long while before any new changes. When the time come for me to go back on a treatment, I believe I will try Tysabri because it is a once a month infusion instead of weekly injections. I have had all I can take from injections.

Farewell Copaxone you have been kind to me; for the last several years you did stabilized my brain lesions, but my body can no longer tolerate you.